Campaign of the Month

Sharing info for the benefit of East Lothian Residents, Businesses & Visitors

Campaign of the Month

November 26, 2015 Uncategorized 0

Throughout November, @LothianLoop ran a series of scheduled tweets encouraging people to vote for @cuthillpark, Prestonpans, in the Best Park awards.

Voting has now closed and the winner will be announced on 2 December at a Fields in Trust event.

Good Luck Cuthill Park!

Throughout December, @LothianLoop will be campaigning for the Scottish Medicines Consortium to approve Translarna  Рthe first ever drug to potentially treat Duchenne muscular dystrophy.

This follows the news that East Lothian laddie Cormac Fegan was the 1st boy in the UK to receive Translana, albeit for a limited six month period.

Translarna is already available in several countries including France, Italy, Spain, Germany and Denmark, but it is not yet approved here in the UK.

You can read more about the fight for access to Translarna here.

Learn more about Muscular Dystrophy here.

Find out about Cormac and his family’s campaign to help him here.

 

 

 

 

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